Patient Follow-Up and Survivorship

Patient-Centered Guides offers information on follow-up clinics for childhood cancer survivors.

A resource for cancer survivors, Live Strong is an educational program of the Lance Armstrong Foundation.

Beyond The Cure is designed to provide information pertaining to all areas of the survivors life. The personal profile allows you to build a profile of late-effects specific to your diagnosis and treatment.

The Association of Cancer Online Resources provides resources and inspiration for children with cancer and their families.

Candlelighters Childhood Cancer Foundation considers follow-up care to be “a necessity, not a luxury,” and provides practical questions and answers to ongoing survivorship issues.

The National Coalition for Cancer Survivorship offers numerous resources and advocacy opportunities for cancer survivors.

Children’s Oncology Group has developed long-term follow-up guidelines fro screening and management of late effects in survivors of childhood cancer.

Follow-Up Clinics for Childhood Cancer Survivors

California

Children's Hospital Los Angeles
LIFE Program (Long-term Information, Follow-up, and Evaluation)
4650 Sunset Boulevard, #54
Los Angeles, CA 90027
(323) 669-2489
Mary Baron Nelson, MS, RN, CPNP, CPON, Nurse Practitioner and Coordinator
Clarke Anderson, MD
Sees both child and adult survivors; provides referrals for adults.

City of Hope National Medical Center
Long-Term Follow-up Clinic for Survivors of Childhood Cancer
1500 E. Duarte Road
Duarte, CA 91010
(626) 301-8426
Wendy Landier, RN, MSN, CPNP, Coordinator
Smita Bhatia, MD

Colorado

Denver Children's Hospital
HOPE Clinic
1056 East 19th Ave, B115
Denver, CO 80218
Amanda Louey, RN, BSN, Coordinator
(303) 864-5441
Brian Geffe, MD
(303) 861-6776

Florida

Nemours Children's Clinic
Hematology/Oncology Clinic
807 Children's Way
Jacksonville, FL 32207
(800) 767-5437, extension 3761
Annie Rini, RN, BSN, Coordinator
Rotating doctors
Follows children up to age 21, then transitions to adult primary care providers.

Georgia

Children's Healthcare of Atlanta
Cancer Survivor Program
1405 Clifton Road
Atlanta, GA 30322
(404) 315-2717
Melissa Hamilton, Coordinator
Lillian Meacham, MD

Illinois

Children's Memorial Hospital
Long-Term Follow-up Program
2300 Children's Plaza
Chicago, IL 60614
(773) 880-4151
Barbara Lockert, Coordinator
Reggie Duerst, MD
Treats children and teens.

Children's Memorial Hospital
Northwestern Medical Faculty Foundation
Star Program for Young Adult Survivors
675 North St. Clair
Chicago, IL 60611
(312) 695-4979
Karen Kinahan, MS, RN, Coordinator
Arlina Ahluwalia, MD
Treats survivors over 21 years old.

Indiana

Riley Hospital for Children
Indiana University School of Medicine
Childhood Cancer Survivor Program
Riley 4340
702 Barnhill Dr.
Indianapolis, IN 46217
(317) 274-2143 or (800) 238-8399

Maryland

Johns Hopkins Oncology Center
Long-Term Follow-Up Clinic
600 N. Wolfe Street
Baltimore, MD 21287
(410) 614-5062
Kathy Ruble, RN, Coordinator
Cindy Schwartz, MD

Massachusetts

Dana-Farber Cancer Institute
David B. Perini, Jr. Quality of Life Clinic for Childhood Cancer Survivors
44 Binney Street
Boston, MA 02115
(617) 632-5124
Ellen E. Casey, Coordinator
Lisa Diller, MD
Sees children and adults.

Michigan

DeVos Children’s Hospital
The After-care and Transition Program
100 Michigan St. NE
Grand Rapids, MI 49503
(616) 391-2238

University of Michigan
Department of Pediatric Hematology/Oncology
Long-Term Follow-Up Clinic
1500 East Medical Center Drive
Ann Arbor, MI 48109
(734) 936-9814
Marcia Leonard, RN, PNP, Coordinator
Valerie Castle, MD

Minnesota

Fairview-University Children's Hospital
Long-Term Follow-Up Clinic
Harvard Street and East River Road
Minneapolis, MN 55455
(612) 625-4443
Nancy Youngren, RN, Coordinator
Joseph Neglia, MD

Missouri

St. Louis Children's Hospital
Late Effects Clinic
One Children's Place
St. Louis, MO 63110
Medical directors: Robert Hayashi MD, Shalini Shenoy MD
Nurse coordinator: Amy Schulve
(314) 454-4125

New Jersey

Hackensack University Medical Center
Tomorrows Children's Institute
Cure and Beyond
385 Prospect Avenue
Hackensack, NJ 07601
(201) 487-8987
Hope Castoria, RN
Beverly Ryan, MD
Sees both child and adult survivors of pediatric cancer.

New York

Memorial Sloan-Kettering Cancer Center
Long-Term Follow-Up Clinic
Department of Pediatric Oncology
1275 York Avenue
New York, NY 10021
(212) 639-8138
Elaine Pottenger, MS, RN, CPNP, Coordinator
Charles Sklar, MD
Sees survivors 30 years old or younger; will do one-time consultation with older survivors.

University of Rochester Medical Center
Strong Children's Medical Center
Follow-Up Clinic
601 Elmwood Avenue
Rochester, NY 14642
(585) 275-2981
Cindy Proukou, RN, MSN, CPNP, Coordinator
Andrea Hinkle, MD
Follows both child and adult survivors.

Roswell Park Cancer Center
Long-Term Follow-Up Project
Elm and Carlton
Buffalo, NY 14263
(716) 845-8011
Theresa Carbone, MS, RN, CPNP, Coordinator
Daniel Green, MD
Sees children, teens, and young adults.

SUNI Upstate Medical University
Kids Now Off Therapy
Pediatric Hematology/Oncology
750 E. Adams Street
Syracuse, NY 13210
(315) 464-7229
Sue Shaw, RN, MS, PNP, Coordinator
Irene Cherrick, MD

North Carolina

Duke University Medical Center
Pediatric Hematology/Oncology
Erwin Road
Durham, NC 27710
(919) 684-3401 (appointments for children and teens)
(919) 684-8964 (appointments for adults)
Philip Rosoff, MD (children and teens)
Carlos DeCastro, MD (adults)

Ohio

Children's Hospital Medical Center
ATP Five-Plus Clinic
333 Burnette Avenue
Cincinnati, OH 45229
(513) 636-3512
Judy Correll, RN CPNP, Coordinator
Cynthia DeLaat, MD
Sees both child and adult survivors; will refer.

START-UP Clinic
“Staying Together After Recovery and Tapping Unlimited Potential”
One Perkins Square
Akron, OH 44308
(330) 543-3215

The Children’s Hospital at the Cleveland Clinic
Pediatric Hematology/Oncology
9500 Euclid Ave.
Cleveland, OH 44195
(216) 444-0015

Pennsylvania

Children's Hospital of Philadelphia
Long-Term Follow-Up Clinic
34th and Civic Center Boulevard
Philadelphia, PA 19401
(215) 590-3025
Wendy Hobbie, Coordinator
Sue Ogle, CPNP and Barbara Anne Heib, CPNP
Jill Ginsberg, MD
Sees both child and adult survivors.

The University of Pennsylvania Cancer Center
14 Penn Tower
Philadelphia, PA 19104
(215) 615-3371

South Carolina

Medical University of SC Children's Hospital
FACT (Follow-up after Cancer Treatment)
135 Rutledge Avenue
PO Box 250558
Charleston, SC 29425
(843) 792-2957
Diane Dufour, MS, CPNP, Coordinator
Sonja Muckensuss, RN, BSN
Julio Barredo, MD

Texas

Children's Medical Center of Dallas
After the Cancer Experience (ACE)
1935 Motor Street
Dallas TX 75235-7794
(214) 456-2948
Debra Eshelman, RN, CPNP, Coordinator
Gail Tomlinson, MD, PhD (children and teens)
Kevin Oeffinger, MD (young adults)

M D Anderson Cancer Center
Long-Term Survivor Clinic
1515 Holcombe, Box 87
Houston, TX 77030
(713) 792-6619
Nita Burrer, RN, ANP, CNS, Coordinator
Norman Jaffe, MD
Steve Culbert, MD
Sees children, teens, and adult survivors of childhood cancer.

Texas Children's Hospital
Late Effects Clinic
Hematology/Oncology
6621 Fannin Street, CC-1510.21
Houston, TX 77030
(832) 822-4727
Sarah Bottomley, CPNP, Coordinator
ZoAnn Dreyer, MD

Life After Cancer Program
Hematology & Oncology Center
Cook Children's Medical Center
901 Seventh Avenue, Suite 220
Fort Worth, TX 76104
(817) 810-2125
Lisa Bashore MS RN CPNP, Coordinator
Jeffrey C. Murray, MD
Treats up to age 30 and will refer adults.

Washington

Children's Hospital & Regional Medical Center
Division of Hematology/Oncology, Mailstop 6D1
ACCESS Long-Term Follow Up Program
4800 Sand Point Way
Seattle, WA 98105
(206) 987-2106
Debra Friedman, MD
Erin Mahan, ARNP, Coordinator

Washington, DC

Long Term Survivor Clinic
Children’s National Medical Center
111 Michigan Ave NW
Washington, DC 20010
(202) 884-2140

Wisconsin

University of Wisconsin Hospital and Clinics
Caring for Life Clinic
600 Highland Ave.
Madison, WI 53792
(608) 263-6200

Children’s Hospital of Wisconsin
Long Term Follow-up Clinic
8 East Clinic
9000 W. Wisconsin Ave.
Milwaukee, WI 53226
(414) 266-2420